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Angelman Syndrome Foundation Walk
. Please Note --> This is a Past Event!! .
Date:
5/16/2015
Time:
9:00 AM TO 12:30 PM
1400 Lake Drive
Eugene, OR 97404
Phone:
800-432-6435
Event Description:
Eugene, OR, May 5, 2015 — In Eugene and in cities across the country, thousands will participate in one of 35 events designed to raise awareness of and provide funds to support improving the lives of those affected by Angelman syndrome, a severe, neurogenetic disorder often misdiagnosed as autism and cerebral palsy. The Angelman Syndrome Foundation (ASF) National Walk raises funds to support the ASF, a national nonprofit organization dedicated to advancing the awareness and treatment of Angelman syndrome. Each year, more than 10,000 walkers and 1,500 volunteers participate in the ASF National Walk taking place the third weekend in May. This year, the ASF National Walk has expanded internationally with a new Walk site in Ontario, Canada. Several other new cities have also joined the cause as 2015 ASF National Walk sites—Olathe, Kan., International Falls, Minn., Lake of the Ozarks, Mo., Durham, N.C., and Warwick, N.Y. “As a mother of a child with Angelman syndrome, I know first-hand the struggles of raising an individual with this disorder—and I want to do everything I can to help other families who are experiencing life with Angelman syndrome,” said Alisa Giulietti, Eugene-area resident and mother to a young boy with Angelman syndrome. “I am looking forward to rallying the community in support of the Angelman Syndrome Foundation, which has made a difference in my life and works to support everyone impacted by this disorder.” Angelman syndrome is caused by the loss of function of a particular gene during fetal development, resulting in severe neurological impairment present at birth and lasting for a lifetime. Symptoms vary and include severe developmental delays, speech impairments, seizures, walking and balance disorders, and frequent laughter and excitability. While there is no definitive count, it is estimated that Angelman syndrome occurs in one in every 15,000 live births. The ASF National Walk supports the community’s ultimate goal of finding a cure for Angelman syndrome. Since the event began in 1999, more than 70,000 individuals have participated, raising more than $9 million for the ASF. These valuable dollars fund research initiatives, support services for families and caregivers of individuals with Angelman syndrome, and informational and educational programs for those battling the disorder including families, educators, health care professionals and researchers. “In the last 15 years, the ASF National Walk has helped to raise much-needed funds and awareness for the Angelman syndrome community,” said Eileen Braun, ASF Executive Director, walk founding organizer, and mother of Kaitlin, who has Angelman syndrome. “However, there is still much work to be done when it comes to meeting the future funding needs on behalf of the Angelman syndrome community and achieving the ultimate goal of finding a cure for Angelman syndrome.” The fundraising goal for the 2015 ASF National Walk is $1.25 million. The annual event will take place in the following cities on Saturday, May 16: Alabama (Huntsville) Arizona (Tempe) California (Los Angeles) California (Sacramento) California (San Diego) Colorado (Denver) Connecticut, (Hartford) Florida (Orlando) Illinois (Naperville) Indiana (Indianapolis) Kansas (Olathe) Kansas (Wichita) Louisiana (Breaux Bridge) Massachusetts (Boston) Michigan (Auburn Hills) Minnesota (Hutchinson) Minnesota (International Falls) Missouri (Lake of the Ozarks) Missouri (St. Louis) Nevada (Las Vegas) New York (Buffalo) New York (Warwick) North Carolina (Durham) Ohio (Cincinnati) Ontario (Canada)** Oregon (Eugene) Pennsylvania (Philadelphia) Pennsylvania (Pittsburgh) South Carolina (Columbia) Tennessee (Nashville) Texas (Dallas) Texas (Houston)* Utah (Salt Lake City) Washington D.C. Washington (Seattle) *The Houston, Tx. Walk takes place Sunday, May 17. **The Ontario, Canada Walk takes place Saturday, May 23. To learn more or register for the 2015 ASF National Walk, please visit angelman.org/walk. About Angelman Syndrome Foundation The Angelman Syndrome Foundation's mission is to advance the awareness and treatment of Angelman syndrome through education and information, research, and support for individuals with Angelman syndrome, their families and other concerned parties. The ASF is the largest non-governmental funder of Angelman syndrome research by providing grants to researchers pursuing promising avenues of discovery. Since 1996, the ASF has funded research grants totaling nearly $7.2 million. The ASF has awarded a majority of these funds ($6.87 million) beginning in 2005. For more information about the ASF, please visit www.angelman.org.
Directions:
Emerald Park
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